Christian is doing great! Medication working!

For the past month, Xtian has been doing wonderful, Risperdal really seems to help him stay calm and compliant. He is so much happier all the time. However, he has gained 20 lbs, since it makes him hungry!!! Things are much, much better - hope they continue. He has been communicating more and is trying to socialize with other kids his age.

It's been awhile - latest update on Xtian!

Hello!

Sorry I haven't written in awhile; however, things have gotten alot better with Christian. He has been on Risperdal since June of this year, and in the past 3 weeks his behavior has significantly improved. We now have a nurse for VNA of Spring Grove, who comes to the house twice a week to help us with Christian. He is more compliant, calm and affectionate, however; the medication has caused him to gain 20 lbs. His appetite has just decreased this past week, so we will wait and see if his weight goes back down. If it doesn't we may have to switch him to Abilify, which means the transition period may be another challenge. Will keep you posted.

Today is Xtian's B-day.

Today is Xtian's 9th birthday and we are only have my parents over. We decided not to invite anyone because the last time we had people at the house Xtian had a terrible, terrible meltdown and we had to ask people to leave. He was running around screaming, hitting and being mean to everyone. It was terrible.
Good news is that past couple of days Xtian has been doing extremely well, no violent outbursts and he has been doing extremely well at school also. Hopefully this trend continues. Will post pics later of xtian's b-day party!

Have a great labor day weekend!

Got some help!!!

Yes! Finally, we are getting some help, at home, with Xtian. Our health insurance company approved 25 hours for us to have a nurse from Bayada Nurses to come to our home. She will be able to help us complete Xtian's potty training (he will only pee on potty, not do the other - which forces us to rely on pull-ups for that) and help with dealing with his violent outbursts. Wonderful, to hear that someone can gives the help that we have been asking for - for 2 years. We requested additional TSS services, but they only approved 5 extra hours - but will only be used in school. We spent months talking to all the psychiatrists, agency staff, etc., told by these people "well get you the help you need" and was turned down by someone who wasn't even part of this process, someone who had never talked to me or even met my son. I really shouldn't have been surprised, but I was. Have to love insurance companies!!! It is never about helping anyone, it is all about the $$$.
But, as usual, because I speak up and am very vocal about my opinions, I am the one with the problem - I have an "attitude problem". Whatever. Anyway - am very, very happy that we got approved for a home health care aide. Hopefully it will work out for the best.

Past couple of days have been wonderful!!

Since we have increased his meds; the past couple of days have been wonderful with Xtian. He has been so pleasant, compliant and happy. His appetite has calmed down a bit and his more affectionate than ever. He also has been communicating more - let's hope this trend continues!!!!

8/15/09 - Saturday great!/Sunday no-so-great

Xtian was wonderful on Saturday, was very happy and in a good mood all day Saturday, took him to the store, we got in the pool, great behavior!

Sunday, Xtian woke up in great mood, very happy, so I decided to take him to Cascade Lake in Manchester, MD, for some reason he decided he did not want to go when we got there and started to "freak out", whine/scream, in the truck just as we turned into the place....I had called my mom right before we got there; because I couldn't find it; since she takes him there all the time. I had went past it and when I got there - he started acting up. My mom could hear him on the phone so she said "Just bring him over our house" - so I took Xtian over my parents - which of course - made him happy - and he will be home later....feel bad having to turn to my parents so much......

Good day 2day - Pine Valley Farms

Xtian has been very good day, Kids club took him to Pine Vally Farms in Littlestown, PA - he loved it!!! Apparently he was jumping in front of the goat and the goat would jump back everytime, Xtian was laughing - having fun!!! Wish I could have seen that - have to take him there soon!!!